yes, that’s my dad pouring FREEZING water over my girlie-screaming ass. it all looks like fun and games (i did donate as well) but there is a reason for the ALS (In the UK it’s the MND Association) ice bucket challenge. i did some research and was told/seeing the same things. the idea is to simulate the shock and pain a sufferer feels daily. i’ll be blunt i have no idea if that’s true or not however i think it works pretty well.
seeing as i am in the UK you can donate here via this link https://www.justgiving.com/mndassoc/ i am unsure as to the USA ALS links so feel free to comment with them. i used a text code, i know the number is 70070 but for the life of me i cannot remember the code you send to it. again, if anyone can help.
There’s also an Ice Bucket Challenge for Macmillan too and you can donate with a code by sending ICE to 70550 that will donate £3 to The Macmillan Nurses which is also an amazing cause. You can also Wimp out and text FINE to 70550 to give £10 instead.
this is straight from the Macmillan website, which i think is really important for ANY ice bucket challenge:
As with all challenges, there can be risks so it’s important you look after yourself and make sure you don’t put yourself in any danger by undertaking this challenge.
If you are concerned about your health please seek medical advice and do not undertake the challenge.
For those taking part don’t forget to wrap up warm afterwards and take care.
on a personal note i do have to say for my fibro-friends be careful. i’m now stiff as hell and sorting out to chill in bed. though i am warm that instant moment of being freezing cold made me completely tense up and now…..ouw.
feel free to pass this around and have a giggle but please donate to either/both causes and remember it’s for charity its not just all fun and games.
I’m sorry it’s been so long since an update, i’ve actually had a fair amount to process. and the following may include bits that are TMI so i’ll put it under a cut 😀
Continue reading Well Then….. (Health Update)
will categorise later cuz my phone wont let me.
I saw my doctor earlier and it boils down to two things. I have a single polycystic ovary (the right one lol) and i am also pre diabetic.
I have to make man changes which, with my fibromyalgia will not be easy. Cutting out the crap food is easy enough, but the exercise will not be as easy as it sounds.
in other news I also may need to have my pinky toes pinned.
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I went to the bank today to talk about an overdraft. Long story short it was turned down because I’ve already been overdrawn on a basic bank account.
As it stands, my “business” is doing shit and I have no way of getting a “normal” 9-5 because of my fibromyalgia making that impossible…. i’d drop everything, if I could even lift it in the first place…. I couldn’t be on my feet all day, or my ass, I can’t do office work because a) id be sat down b) i’d be sat staring at a screen all day (HELLOOOO SIEZURES) and c) I’m dyslexic! I’ve already been told I can’t do computer work or till work. I absolutely HATE talking to people so customer service iS A NO GO!!
I am out of options.
Continue reading I am so fkn done
so I wanna do an Egyptian Isis cosplay (with a twist obviously)
I know I need a belly dancing skirt (in blue) a blue corset and blue Isis wings. Then I can accessorize with gold.
WHERE I would do this shoot I dont know. Somewhere near water with some wind would be good….
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I was reading a blog post about near misses and it made me realise I never actually said (in “public”) about my own.
the 7/7 tube bombings. That morning I was supposed to go to London, I’d get in to Kings Cross and then would have taken Victoria line….. See where I’m going?
id had a terrible night, and texted my friend saying I really couldn’t. I felt terrible about cancelling but felt better about it when she said she was about to tell me the same thing.
we both woke up a few hours later to the news. I went pale and actually started shaking. If all had gone to plan, I would have been on that train at that time.
I got a call from my friend who had realised the same thing and we sat sobbing on the phone to each other.
someone somewhere was watching over both of us that day.
i moved the “In The Shadows” posts to a newly created blog as i want to keep this one solely for my health etc updates.
head over to http://kazzieskrypt.wordpress.com i’ve found some sort of catharsis from writing them. got some ideas for others too.
thank you kindly.