I haven’t actually written about my disabilities and how they impact my day to day life for a while. This isn’t because they haven’t been affecting me, but simply because when I’ve passed comments I’ve found that certain areas of the disabled community (and society…. I’ll get there) seem to think it’s a competition of some sort and that some people just aren’t “disabled enough”; for what exactly I’m not 100% sure.
What I am sure about is that just because I don’t “look disabled” doesn’t mean my disability can be written off or ignored & invalidated and when I say the words “I am disabled”, I shouldn’t have to prove it to anyone.
Continue reading Not Disabled Enough…?
First off, if you haven’t heard of Hickies i suggest you take a look at this and then head back to read my honest review.
Continue reading Hickies Review
OK so imma add in a little background info about just why im so excited about PokemonGo.
If you’re new to my blog – I have depression, borderline personality, bipolar and depression.
when pokemon first came out, we didn’t have the money for the handheld or the games. they were just far too expensive, so while everyone was playing the card game or the Gameboy, I had a sega mega drive (which I absolutely loved, it was my first gaming console).
Continue reading how PokemonGo is helping me battle depression.
I’ve actually been wanting to do this blog for a while and I’ve never really been able to put into words what it’s like.
After today I think I have the descriptions down. And yes….. this will get VERY VERY TMI.
Continue reading TMI – FMS things no-one talks about
One of the things few people openly talk about in regards to fibromyalgia, is food intolerance and what it does to our systems.
Well i am gonna break that silence. Take it from here on out that it may get TMI – sorry, but this happens.
Continue reading Fibro and food intolerance
Ok so once more I apologise for not updating recently myself and my parents haven’t been well and we’re still recovering.
So last week I saw the doctor and we talked about snap, crackle and pop.
Continue reading An update
I’ve been doing some research and sadly the NHS will not supply me with a walking frame that’s fit for purpose. They’ll only help me with one that is for indoor use only which is no freaking help for me.
They also want their crutches back, which is sort of fine because they’re two or so inches too short and im usually twisted off to one side using them.
So…. I made a GoFundMe page so I can raise some cash to get myself a decent walking frame that’s gonna last and a set of custom crutches that are long enough for my height.
It’s amazing how the NHS are all about helping until you desperately need that help, then suddenly you’re too you and they have no money. Though they were happy to supply me with a fucking wheelchair. No. I want to keep my independence as long as I can.
So here’s the important bit. I’m aiming to raise £200, it’s enough for me to get what I need. I don’t want to be greedy.
The link is http://www.gofundme.com/kazmobilitymission if you cant give that’s fine, all I ask is for you to share my story by sharing the link.
For the newcomers to my blog; I am 29 in March and have a chronic pain condition called fibromyalgia. I also have arthritis. Due to both these illnesses I’m stuck in the house without walking aids and I want to be able to get out and about. I like my independence very much.
The NHS claim I am too young to get the mobility help I need so I have to buy it all myself. My parents are doing the best they can but we just can’t afford to get what I need.
I really hate having to ask for help from people I don’t even know irl but right now, I have no choice. Without my crutches I’m stuck and they aren’t very stable if my head spins and I feel faint so for long haul I need my frame. The one I’m looking at folds up, has four wheels, a seat that lifts to reveal a storage compartment and has brakes too. I’ll try and insert a pic but I’m doing this from my phone so it may not work haha.
I really appreciate whatever help you guys can give me. I’m gonna do a vlog later today to hit my YouTube followers.
Again the link is http://www.gofundme.com/kazmobilitymission
I’m sorry it’s been so long since an update, i’ve actually had a fair amount to process. and the following may include bits that are TMI so i’ll put it under a cut 😀
Continue reading Well Then….. (Health Update)
I see Olivia again tomorrow and i have done NOTHING, none of my “homework” because i don’t know how to do it. i have no idea how to “change” my brain’s way of thinking – it’s been hardwired from a very young age.
on another note: my blue badge application has been approved. i just paid for it. i renew in 2017. next up is getting a rascal and a disabled toilet key. makes life easier.
sorry this is a short one.
So i am CrazyDiamond and I have fibromyalgia, anxiety issues and possible borderline personality disorder (it was touched on 5+ years ago but nothing was ever done as the paperwork was “lost” by the psychiatrist.)
I turned 28 on March 11 this year and as I hit this number, which for some reason I have trepidation about, I realised another year had passed (I count mine from bday to bday not new year to new year) and this is when I sit and ‘re-evaluate my life. (Why has this thing added a ‘ when it’s not needed….? Silly app….)
Continue reading My first post….